Sean’s view of the world

Sean has TWO Big brothers: Evan and Micheal. So he’s super lucky. This gallery is about Michael I’ll get one for Evan after I get pics and links to his famous world. We’d planned to take Michael to his new school on his first day of first grade but that was Wednesday, August 8, and…

I’ve walked past this sign in the St. Lukes NICU many times each day and never looked at it. I stopped and read it and I was shaken–completely hammered with emotions. Our family is so lucky Sean is with us.

[et_pb_section fb_built=”1″ _builder_version=”3.22″ _i=”0″ _address=”0″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” _i=”0″ _address=”0.0″][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” _i=”0″ _address=”0.0.0″ custom_padding__hover=”|||”][et_pb_text _builder_version=”3.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” _i=”0″ _address=”0.0.0.0″]So we left Presbyterian St. Lukes NICU and came back. When we got back the white car at right was parked across two spaces. I didn’t want to get my car damaged so…

[et_pb_section fb_built=”1″ _builder_version=”3.22″ custom_padding=”0|0px|0|0px|false|false” fb_built=”1″ _i=”0″ _address=”0″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” _i=”0″ _address=”0.0″][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” _i=”0″ _address=”0.0.0″ custom_padding__hover=”|||”][et_pb_text _builder_version=”3.27.4″ _i=”0″ _address=”0.0.0.0″] Sean got to come home Thursday night. In truth, WE ALL got to come home Thursday night. It was like being paroled from the tiny room and exhausting routine and regimen. Boy are…

GOOD NEWS-ONE of TWO So the labs came back today from the biopsies several days ago and Sean’s digestive issues can be solved with surgery. The diagnosis is Hirschsprung’s (HIRSH-sproongz) disease, which doesn’t sound great and of course its better to have no issues–but this one though rare is common enough that it can be…

Here’s a gallery of some of some Sean and Olga pics. You can really see how little our little man is–and as of yesterday he finally regained his birth weight after slowly losing weight each day (normal for many babies).